All Things Celiac – Dermatology and Celiac Disease: Did Gluten Cause this Rash?

Francie KelleyLeave a Comment

A range of dermatological features have been associated with celiac disease and gluten-related disorders, including Dermatitis Herpetiformis, eczema and psoriasis, to name a few. Attendees will learn about the connection between the largest organ in our body and celiac disease and non-celiac gluten sensitivity in children and adults. “Celiac Disease and Your Skin” will be presented by Channi Silence, MS, a research fellow at Massachusetts General Hospital under the mentorship of Shadi Kourosh, MD, MPH, board certified dermatologist and Assistant Professor of Dermatology at Harvard Medical School. Dr. Kourosh will answer the Q & A along with Sophie Delano, MD, Instructor of Dermatology at Harvard Medical School, who will present “Recognizing & Treating Cutaneous Symptoms of Pediatric Celiac Disease.”

 

Visit our Table at the Canton Farmer’s Market

Francie KelleyLeave a Comment

Enjoy the market and visit Celiac Kids Connection at the Community Table. The mission of the market is to bring together local farmers and artisans. Like most farmer’s markets the array of fresh produce and locally sourced meats, seafood and dairy items are naturally gluten-free (GF). Plus there are a number of GF vendors.

 

You can learn more about the market on their website.

Story Time with Big Joe

Francie KelleyLeave a Comment

Join the Celiac Disease Programs at Boston Children's Hospital, Children's National Hospital, Celiac Kids Connection and the team from Schar for a story time filled with tales of food, adventure and fun from Big Joe!

His name is Joe Pagliuca, but you can call him Big Joe! That was the name given to him during his days as a preschool teacher, and it is the same name he now uses as a professional storyteller.

This is a monthly story series. We hope you'll attend them all! And, please note, you must register for each of the events individually.

Candy List Updated for 2021

Celiac Kids Connection's annual candy list has been updated for 2021.

As we look towards Halloween and the holiday season, we hope you will find this helpful. If you have any questions, all of the candies on our list include contact information for the manufacturer.

Remember, ingredients are subject to change and you should rely on the ingredient list on the product you are purchasing.

Gluten-Free Cooking on a Budget! Fabulous Family Meals for $25 or Less!

Francie KelleyLeave a Comment

The gluten-free diet is expensive, but it doesn't have to be to still taste delicious! Join us this month for a special webinar looking at cutting costs on your family meals while still making delicious, filling, and fabulous foods.

During this webinar Vanessa Weisbrod, Director of Education and Community Engagement for the Celiac Program at Boston Children's Hospital will talk about cost effective grocery shopping strategies, pantry staples, and demo cooking family dinners that cost $25 or less to cook for a family of four.

Recipes and ingredient lists will be provided prior to the webinar.

 

Board Meeting

Francie KelleyLeave a Comment

Our Celiac Kids Connection board of directors meets regularly to plan activities and set the goals and objectives for our group. Attending a board meeting is a great way to learn more about us, our activities and how we operate. All members are welcome to attend and we love having your input.

Contact by email at CeliacKidsConnection@childrens.harvard.edu for the Zoom link.

We hope to “see” you there.

Host a Gluten-Free Food Drive

The gluten-free diet is expensive which makes accessing gluten-free food products difficult for many families. On top of that many local food pantries do not have sufficient access to gluten-free products.

You can join in our efforts to support our larger gluten-free community by hosting a gluten-free food drive. You can do this as a family, as part of a school organization or a community group. Contact us to get started hosting a gluten-free food drive. We will provide all the tools you need to host a food drive. This includes flyers, products suggestions and more.

Thank you for your support of the gluten-free community.

Sign-up Here to Learn More!

    All Things Celiac – The Intersection of Neurology and Celiac Disease

    Francie KelleyLeave a Comment

    A range of neurological and neuropsychological features have been associated with celiac disease, including headaches, ataxia (coordination problems), peripheral neuropathy (numbness, tingling or pain from nerve damage), cognitive challenges and “brain fog,” to name a few.

    BIDMC neurologist Samuel Frank, MD, and Benny Kerzner, MD, medical director of the Celiac Disease Program at Children’s National Hospital, will discuss the connection between our nervous system and celiac disease in pediatric and adult patients, as well as non-celiac gluten sensitivity.

     

    Disordered Eating and Celiac Disease

    Francie KelleyLeave a Comment

    Disordered eating can come in lots of different forms and affect people with celiac disease in lots of different way. For example, a person living with celiac disease could be misdiagnosed with an eating disorder OR develop one as a result of poor management of the gluten-free diet. Recent research has also shown that women with celiac disease could be twice as likely as the general population to develop anorexia.

    Join Dr. Rose-Marie Satherley from the University of Surrey and Sharon Weston, MS, RD, LDN from Boston Children's Hospital to hear about different types of disordered eating, the latest research, and how to support someone with celiac disease struggling to manage these conditions.

     

    Ask Dr. Weir – September 2021

    This month’s “Ask the Expert” features Dr. Dascha Weir, MD, Associate Director, The Celiac Disease Program, Boston Children’s Hospital. Dr. Weir answers questions about gluten in personal care products and how to help your child after an accidental gluten exposure.

    Question - I feel like we have finally gotten a handle on which foods are gluten-free (GF) and which are not GF. Then I read an article that suggested that in addition to food, I need to make sure my child is not exposed to gluten in soap, lotions, make-up and other personal care products? Do I also need to verify the GF status of my child’s personal care products?


    Dr. Weir - It is important to remember that gluten needs to be ingested to cause immune activation and the small intestine inflammation and damage associated with celiac disease. People with celiac disease do not need to worry about gluten being absorbed through their skin.  However, many families worry that gluten in personal care products will make its way into their child’s GI tract.  While there could be potential exposure in some scenarios (for example, a child putting their fingers in their mouth or drinking bathwater), it is unlikely that significant amounts of gluten would be ingested in these situations because typically personal care products do not contain large loads of gluten. If a personal care product that your family uses has a gluten containing ingredient, you may choose to use an alternative product if one is available. However, you do not need to stick to certified gluten-free products only.  As always, we recommend hand-washing with soap and water before eating as another way to reduce small gluten exposures and spread of infection!  If your child is not doing well or you have specific concerns about their sensitivity to products, please reach out to your celiac team to discuss.

     
    Question - My child went to a birthday party and ate one of the gluten containing snacks by mistake. She only ate a small amount when she realized her mistake. But she was still ill later that evening. For future mistakes, is there an over the counter medication that I can give her to lessen the impact of her exposure to gluten?


    Dr. Weir - This is a common scenario that most families with a child with celiac disease have experienced at some point in time.  Even with all the planning, effort and vigilance that families put into avoiding gluten, mistakes can still happen. Kids with celiac disease have a wide range of symptoms when they ingest gluten. Typically, the symptoms are short-lived and get better with time and supportive measures such as rest, good hydration or curling up with a warm hot-water bottle.  Tylenol (acetaminophen) may be indicated to treat a headache or abdominal pain. If a child experiences significant vomiting with gluten exposure, some gastroenterologist will recommend a fast-acting anti-nausea prescription such as Zofran (ondansetron).  While there are over the counter medications available that claim to break down gluten, we do not recommend them for people with celiac disease either to prevent an exposure or to treat one. Increased and better options for treating children for gluten exposure may be available in the future as scientific discovery and medical practice is always advancing.