How should I prepare for my child to go back to school in the fall?

By The Boston Children’s Hospital Celiac Team There are actually brand new recommendations to help families managing celiac disease safely attend school, day care, after school programs, and other learning environment activities. In 2019, Dr. Jocelyn Silvester and Janis Arnold from our Boston Children’s Hospital Celiac Disease Program team joined a national coalition of educators, health care professionals, food service … Read More

Temporary Policy for Food Labeling Requirements during COVID 19 pandemic. What does this mean to the celiac community?

By Tara McCarthy, MS RD LDN, The Celiac Disease Program, Boston Children’s Hospital Link to Temporary Policy What has changed: In May 2020, the US Food and Drug Administration (FDA) came out with a temporary policy guidance to be used for ingredient substitutions due to disruptions in supply or food shortages during the pandemic. Specifically, manufacturers will be temporarily allowed … Read More

Our Gluten Free Journey

By Kelleigh Roffman Greetings! Our family has been on our gluten-free (GF) journey beginning in 2012 when our then eleven year old twin daughters, Sarah and Kaitlyn, were diagnosed with celiac disease.  It has been our mission to make sure that they traveled the smoothest road possible while navigating the challenges of this disease. Even though the road can be … Read More

Tween Meeting – Virtual

Francie KelleyLeave a Comment

Gather with others to chat and share about life with celiac disease and the gluten-free diet. You can share frustrations and the creative solutions you have developed for living gluten-free in a gluten-filled world. Contact CeliacKidsConnection@childrens.harvard.edu to RSVP and get the Zoom link.

Directory

Directory Updated 5/27/2020 Many of you have told us that you are having trouble finding gluten-free (GF) food during the pandemic. We have reached out to local businesses to create a directory to find GF food and support small and local businesses Click Here to Download If you know of a business that would like to be included, post their … Read More

Being Prepared for COVID-19 with Celiac Disease

By Francie Kelley, Executive Director, Celiac Kids Connection The emergency declarations, school closings and spread of COVID -19 has all of us asking questions. Celiac Kids Connection wants to make sure that you have the information you need. There is great information out there. Boston Children’s Hospital has a number of resources available on its website. This includes information specific … Read More

Navigating Celiac at College

By Anna Cass and Jessica Cohen Jessica Cohen and Anna Cass have teamed up to help you navigate celiac disease at college. Learn about Jessica and Anna. In the months to come we will be sharing our experiences with you. My name is Jessica, and I live in Worcester, MA. I was diagnosed with celiac disease at the end of … Read More