Board Meeting

Francie KelleyLeave a Comment

Our Celiac Kids Connection board of directors meets regularly to plan activities and set the goals and objectives for our group. Attending a board meeting is a great way to learn more about us, our activities and how we operate. All members are welcome to attend and we love having your input.

Contact by email at CeliacKidsConnection@childrens.harvard.edu for the Zoom link.

PLEASE NOTE THE DATE CHANGE TO SEPTEMBER 21ST

We hope to “see” you there.

Story Time with Big Joe

Francie KelleyLeave a Comment

Join the Celiac Disease Programs at Boston Children's Hospital, Children's National Hospital, Celiac Kids Connection and the team from Schar for a story time filled with tales of food, adventure and fun from Big Joe!

His name is Joe Pagliuca, but you can call him Big Joe! That was the name given to him during his days as a preschool teacher, and it is the same name he now uses as a professional storyteller.

This is a monthly story series. We hope you'll attend them all! And, please note, you must register for each of the events individually.

Does Pregnancy Induce Celiac Symptoms? Researchers Are Trying to Find Out

A study team at Beth Israel Deaconess Medical Center led by Dr. Amelie Therrien is conducting a study that aims to observe, understand and determine the frequency of celiac-related symptoms and the impact on the quality of life in patients living with celiac disease during their pregnancy and the postpartum period.

You are invited to participate in this study if you are a woman with an established celiac disease diagnosis who has been following a gluten-free diet for at least 12 months. We are enrolling some women with celiac disease who are pregnant and some women who are not currently pregnant. Women who are currently pregnant and don’t have a celiac disease diagnosis may also be eligible for the study.

If you choose to participate in the study, you will be asked to complete a survey and provide stool samples at specific time points. For more information, please contact cdpreg@bidmc.harvard.edu

Back to School Meet-up for Teens

Francie KelleyLeave a Comment

Join us for a 2-session meet-up designed to connect teens preparing for the upcoming school year. These virtual sessions are on August 25th and September 1st.

Each session will be open discussions where we can learn from each other about managing celiac disease and the gluten-free diet at school. The discussion for week one will focus on “In School” activities like eating in the cafeteria, issues in class and clubs or sports teams.

Week 2 will focus on “Outside School” activities such as going out with friends, group events and how do deal with spontaneous plans when living gluten free requires so much planning.

In each session we will talk about advocating for yourself, understanding celiac disease, developing the skills to manage the gluten-free diet and much more.

 

We hope you will join us for both sessions.

You can RSVP below. Please register for each session independently.

 

Link to the registration for session 1.

Back to School Meet-up for Teens

Francie KelleyLeave a Comment

Join us for a 2-session meet-up designed to connect teens preparing for the upcoming school year. These virtual sessions are on August 25th and September 1st.

Each session will be open discussions where we can learn from each other about managing celiac disease and the gluten-free diet at school. The discussion for week one will focus on “In School” activities like eating in the cafeteria, issues in class and clubs or sports teams.

Week 2 will focus on “Outside School” activities such as going out with friends, group events and how do deal with spontaneous plans when living gluten free requires so much planning.

In each session we will talk about advocating for yourself, understanding celiac disease, developing the skills to manage the gluten-free diet and much more.

We hope you will join us for both sessions. You can RSVP below.

Please register for each session independently.

 

Link to the registration for session 2.

GF Faves Club – August 2021

Francie KelleyLeave a Comment

Gluten-Free Faves Club is a celiac twist on the traditional book club. Teens and tweens meet monthly to discuss favorite gluten-free items centered on a theme.

Our August discussion topic is "Back to School". Bring your questions and share your experiences. There is a lot we can learn from each other. RSVP on this page and we will send you the Zoom link.

We meet on the 4th Sunday at 7 pm.

Please join us.

Story Time with Big Joe

Francie KelleyLeave a Comment

Join the Celiac Disease Programs at Boston Children's Hospital, Children's National Hospital, Celiac Kids Connection and the team from Schar for a story time filled with tales of food, adventure and fun from Big Joe!

His name is Joe Pagliuca, but you can call him Big Joe! That was the name given to him during his days as a preschool teacher, and it is the same name he now uses as a professional storyteller.

This is a monthly story series. We hope you'll attend them all! And, please note, you must register for each of the events individually.

PLEASE NOTE THE DATE HAS CHANGED 

 

Celiac Disease Early Childhood Parent Series

Francie KelleyLeave a Comment

Weekly Series – July 27, 2021 – August 17, 2021

Join Celiac Kids Connection at Boston Children's Hospital for a 4-week series designed to support parents with planning for the upcoming school year. The seminar is designed for families with a child entering pre-k through second grade.

Each week we will explore a different topic. There will be a short presentation, followed by group discussion and lots of time for questions. We ask that you please plan to attend all four meetings so that group members can get to know one another and provide ongoing support throughout the year.

The meetings will occur on Tuesday nights at 8:00pm (Eastern Time) and last approximately 1 hour.

Session 1 - July 27th: Planning Ahead for the New School Year: Setting Your Child Up for Success

Session 2 - August 3rd: Lunch Line Logistics: Successfully Navigating Your School's Cafeteria

Session 3 - August 10th: Birthdays, Carnivals, and the PTO

Session 4 - August 17th: Supporting Your Child in Becoming a Strong Advocate

 

Food Label Modernization Act of 2021

TAKE ACTION - Join us, the Celiac Disease Foundation and the entire GF community in supporting the Food Labeling Modernization Act of 2021.

This bill would require that all gluten-containing grains (wheat, rye, AND barley) be clearly labeled on food packaging, making it easier and safer for individuals with celiac disease to purchase food items. Current food labels do not provide the simple, straightforward information that celiac patients need to evaluate products and make healthy choices.

Please take ONE MINUTE to contact your Members of Congress, using the Celiac Disease Foundation's simple, pre-populated form, encouraging their support of this important bill.

Click here to learn more about this bill.