Thank You Celiac Kids Connection Volunteers

It is Volunteer Appreciation Week! Even in these hectic times, we would like take a moment to thank all the special people who make Celiac Kids Connection great. THANK YOU!!! We would not be who we are without your hard work and dedication. Celiac Kids Connections relies on our volunteers. There is nothing we do that does not require volunteer … Read More

GluTeen Free: How I go to School Dances without Feeling Awkward

By Abby Baird I’m Abby B, a 10th grader who has had celiac disease for two years. I play multiple sports and go to a small private Christian school. I got diagnosed with celiac disease when I was in 8th grade and have had it for almost two years now. Since I go to such a small school I am … Read More

COVID-19: Want to help fellow celiac families in need?

By Marie Ericson, Board Chair, Celiac Kids Connection Originally Posted 3/17/2020 and updated 4/7/2020 During this difficult time there are ways you can help other families. Here are a few of the ways you can help: Donate gluten-free (GF) food items to the Gluten-Free Food Bank: There will be a need for GF food items at local food pantries. Contact … Read More

Summer Fun at the NE Revolution

By Francie Kelley, Executive Director, Celiac Kids Connection, Boston Children’s Hospital On June 30th we gathered at Gillette Stadium in Foxborough for our summer social event. We started with at tailgate party; braving the 90+ degree heat. We managed to stay comfortable. The kids (and some adults) played with bubbles, sidewalk chalk, kites and of course we kicked soccer balls … Read More

Thoughts on Celiac Awareness Month – 2018

By Francie Kelley, Executive Director, Celiac Kids Connection As Celiac Awareness Month (May) comes to a close it is time to reflect on the ways Celiac Kids Connection raised awareness. Awareness months are used to increase knowledge of an issue or celebrate something. This year we shared information about celiac disease and celebrated the positive impact this has had on … Read More

Celiac Disease: Biology Basics

Celiac disease is defined as a chronic small intestinal immune-mediated enteropathy precipitated by exposure to dietary gluten in genetically predisposed individuals.1 This one sentence nicely captures the features of celiac disease—but what exactly does it mean? In this section, we explore the biology of celiac disease. We will cover many questions that might come up while learning about celiac disease, … Read More

Volunteer Appreciation Week

By Francie Kelley, Executive Director Celiac Kids Connection It is Volunteer Appreciation Week, a time for us to take a moment to thank all the special people who make Celiac Kids Connection great. THANK YOU, it would be impossible to do all that we do without your hard work and dedication. There is nothing that we do that does not … Read More

An Afternoon of Fun and Learning – Our March 2018 Educational Event

By Francie Kelley, Executive Director, Celiac Kids Connection Fifty of our members gathered on March 4th to talk about eating away from home. We had a panel of teens that shared their real life experiences and how they stayed gluten free (GF). Our teens were all very informative and they made us laugh Here are some of the tips they … Read More

What Role Does Tissue Transglutaminase (tTG) Play in Celiac Disease?

In addition to HLA-DQ2 and HLA-DQ8 haplotypes, an enzyme called tissue transglutaminase or tTG (also known as transglutaminase 2 or TG2) also influences how gliadin peptides are presented to CD4+ T cells. You may have heard of tTG because of the tTG-IgA test, which is used by many doctors when testing for celiac disease.1  tTG is a multifunctional enzyme—a protein … Read More

What Does it Mean to Be Genetically Predisposed?

So, if gliadin is only partially digested when we eat it, and gliadin peptides are able to activate T cells, why doesn’t everyone who eats gluten develop celiac disease? As described above, MHC class II proteins display peptides on the surface of antigen presenting cells for CD4+ T cells to recognize. There are 3 major types of MHC class II … Read More