Celiac Teens Connect – An Informal Monthly Gathering for Teens – Millis, MA

Francie KelleyLeave a Comment

Gather with other teens at Twist Bakery in Millis, MA. You will have a chance to meet, chat and share with other teens about life with celiac disease and the gluten-free diet. You can share frustrations and the creative solutions you have developed for living gluten-free in a gluten filled world.

Remember, Twist was voted by USA Today readers as the best GF Bakery in the country.


RSVP

Please RSVP. We want to save a large enough table.

Celiac Teens Connect – An Informal Monthly Gathering for Teens – Millis, MA

Francie KelleyLeave a Comment

Gather with other teens at Twist Bakery in Millis, MA. You will have a chance to meet, chat and share with other teens about life with celiac disease and the gluten-free diet. You can share frustrations and the creative solutions you have developed for living gluten-free in a gluten filled world.

Remember, Twist was voted by USA Today readers as the best GF Bakery in the country.


RSVP

Please RSVP. We want to save a large enough table.

Celiac Teens Connect – An Informal Monthly Gathering for Teens – Millis, MA

Francie KelleyLeave a Comment

Please note the date has been changed from November 17th to November 10th.

Gather with other teens at Twist Bakery in Millis, MA. You will have a chance to meet, chat and share with other teens about life with celiac disease and the gluten-free diet. You can share frustrations and the creative solutions you have developed for living gluten-free in a gluten filled world.

Remember, Twist was voted by USA Today readers as the best GF Bakery in the country.


RSVP

Please RSVP. We want to save a large enough table.

Celiac Teens Connect – An Informal Monthly Gathering for Teens – Millis, MA

Francie KelleyLeave a Comment

Gather with other teens at Twist Bakery in Millis, MA. You will have a chance to meet, chat and share with other teens about life with celiac disease and the gluten-free diet. You can share frustrations and the creative solutions you have developed for living gluten-free in a gluten filled world.

Remember, Twist was voted by USA Today readers as the best GF Bakery in the country.


RSVP

Please RSVP. We want to save a large enough table.

Small Group Gathering – Ward’s Berry Farm – Sharon MA

Francie KelleyLeave a Comment

Come join us for a “Pick and Play” at Ward’s Berry Farm!

We are hosting a small group event for families and children to connect with one another in a fun family setting.  There will be hayrides, pumpkin picking, and a chance for the kids to enjoy the sand box, playground and farm animals.

Cost for the hayrides to the pumpkin patch is $3 per person over 3. The hayride leaves every fifteen minutes and for one pumpkin you will need approximately $5.

This is a bring your own snack event. There is soft serve ice cream (safe for people with celiac) for purchase in the store and other food but not all is gluten free.

There are picnic tables, benches and wagons for available to use. Wear comfy shoes and clothes!

RSVP to Jennifer Boyaj.

Summer Fun at the NE Revolution

By Francie Kelley, Executive Director, Celiac Kids Connection, Boston Children’s Hospital

On June 30th we gathered at Gillette Stadium in Foxborough for our summer social event. We started with at tailgate party; braving the 90+ degree heat. We managed to stay comfortable. The kids (and some adults) played with bubbles, sidewalk chalk, kites and of course we kicked soccer balls around. We enjoyed each other’s company and delicious sandwiches and treats from Twist Bakery and Café.

After the tailgate we went to the stadium for the NE Revolution vs. DC United game. We had great seats and were all together for the game. The game was exciting and the home team prevailed. The score was close throughout the match. NE won by just one point with a final score of 3 – 2.

Soccer is a great family activity and this close game was a lot of fun. The tailgate aspect of the event meant we had complete control over the food, eliminating any worries about keeping everything gluten-free. I hope everyone enjoyed the evening as much as I did.

 

Thoughts on Celiac Awareness Month – 2018

By Francie Kelley, Executive Director, Celiac Kids Connection

As Celiac Awareness Month (May) comes to a close it is time to reflect on the ways Celiac Kids Connection raised awareness. Awareness months are used to increase knowledge of an issue or celebrate something. This year we shared information about celiac disease and celebrated the positive impact this has had on some of our members’ lives.

We provided knowledge with the introduction of the Celiac Science section of our website. This section explores the basic biology behind celiac disease. We talk about the immune system, autoimmune diseases, gluten, the small intestine and much more. Please visit this section.

We provided a celiac disease fact sheet that could be shared to help friends, family members, classmates and co-workers better understand celiac disease and the gluten-free diet.

Working with our wonderful physicians and staff at Boston Children’s Hospital we provided information about Gluten Detective and dispelled some celiac disease myths. Gluten Detective is an at home test to determine if you have been exposed to gluten.

We celebrated positive experiences that would not have happened without celiac disease. One member shared about coming together as a family to advocate for their daughter at school. Another family shared about how the diet can be difficult but how happy they are that their daughter is so much healthier. And, one of our members, Kelly Farewell, told us how celiac disease actually led to a job offer. You can read Kelly’s story on our Facebook page.

We hope you will continue to spread Celiac Disease Awareness throughout the year.

Celiac Disease: Biology Basics

Celiac disease is defined as a chronic small intestinal immune-mediated enteropathy precipitated by exposure to dietary gluten in genetically predisposed individuals.1

This one sentence nicely captures the features of celiac disease—but what exactly does it mean?

In this section, we explore the biology of celiac disease. We will cover many questions that might come up while learning about celiac disease, including:

Medical researchers are always running new studies to better understand celiac disease. Please check back frequently for updates!

NEXT TOPIC: The immune system

References
  1. Ludvigsson JF, Leffler DA, Bai JC, et al. The Oslo definitions for coeliac disease and related terms. Gut. 2013;62(1):43-52.

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