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Collection topics include, What is Celiac Disease, Experiencing Celiac Disease, How To Read Labels, Grocery Shopping, Our Favorite Gluten Free Products, Gluten Free at Home, and Gluten Free Baking, to name a few.
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Hi, I just became a member! Do you have any suggestions on Camps?
Karen – Check out our page on camps. https://www.celiackidsconnection.org/2017/02/20/gluten-free-summer-camps/
Quite a few of our members enjoy Camp Celiac each year in RI. They open registration in February and often fill fast. There may not be spots left but it is worth looking into.
Do you know of any support groups aimed at kids and their families? My daughter was recently diagnosed and is having a very hard time dealing with it.
That is what we do here at Celiac Kids Connection. We are a family support organization. Check our our “Who We Are” page. Feel free to use the Contact Us link if you need more information.
So happy to have found this. My son was recently diagnosed and we are having mostly a hard time with my husband’s profession – he is a brewer at a craft brewery and we are not sure how to proceed.
Wow, that is a tough one. Obviously, your son cannot drink the beer. In the brewing environment, my biggest concern would be the possibility of ingesting the barley. Not only keeping your son from eating the barley but getting it on his hands and ingesting particles that are in the air.
It is hard to say what kind of problem airborne barley would be without knowing the environment. How messy is the process? Is there barley in the air either from pouring or from sweeping? If yes, are the barley particles large or small? If they are large particles, would something like a surgical mask be enough to protect him
It has been suggested that my husband should change his clothes before coming home. They do mill the grain there almost daily, but they have two big bay doors that are open most of the day in the warmer months. In terms of particle size they are probably small. I typically drop the kids off there before I head to work but am now questioning that routine with the new diagnosis. Thank you for your thoughts!