Disordered eating can come in lots of different forms and affect people with celiac disease in lots of different way. For example, a person living with celiac disease could be misdiagnosed with an eating disorder OR develop one as a result of poor management of the gluten-free diet. Recent research has also shown that women with celiac disease could be ... Read More
A range of neurological and neuropsychological features have been associated with celiac disease, including headaches, ataxia (coordination problems), peripheral neuropathy (numbness, tingling or pain from nerve damage), cognitive challenges and “brain fog,” to name a few. BIDMC neurologist Samuel Frank, MD, and Benny Kerzner, MD, medical director of the Celiac Disease Program at Children’s National Hospital, will discuss the connection ... Read More
Our Celiac Kids Connection board of directors meets regularly to plan activities and set the goals and objectives for our group. Attending a board meeting is a great way to learn more about us, our activities and how we operate. All members are welcome to attend and we love having your input. Contact by email at CeliacKidsConnection@childrens.harvard.edu for the Zoom ... Read More
The gluten-free diet is expensive, but it doesn't have to be to still taste delicious! Join us this month for a special webinar looking at cutting costs on your family meals while still making delicious, filling, and fabulous foods. During this webinar Vanessa Weisbrod, Director of Education and Community Engagement for the Celiac Program at Boston Children's Hospital will talk ... Read More
Join the Celiac Disease Programs at Boston Children's Hospital, Children's National Hospital, Celiac Kids Connection and the team from Schar for a story time filled with tales of food, adventure and fun from Big Joe! His name is Joe Pagliuca, but you can call him Big Joe! That was the name given to him during his days as a preschool ... Read More
Every Thursday from 1pm-2pm EST, our Boston Children’s Hospital Celiac Program hosts a live Zoom meeting for families to learn about all of the resources available through the Celiac Program at Boston Children’s Hospital and the Celiac Kids Connection Support Group. This is also a great time to ask any questions. Feel free to bring your lunch to this meet-up! ... Read More
Join your Boston Children's Hospital Celiac Disease Program team to learn more about attending school safely with celiac disease. We will discuss federal laws and regulations that govern this autoimmune disease, the appropriate type of plan to set up, reasonable accommodations, and how to get individual support for your family. This meeting is appropriate for families with a child of ... Read More
Enjoy the market and visit Celiac Kids Connection at the Community Table. The mission of the market is to bring together local farmers and artisans. Like most farmer’s markets the array of fresh produce and locally sourced meats, seafood and dairy items are naturally gluten-free (GF). Plus there are a number of GF vendors. You can learn more about ... Read More
Gluten-Free Faves Club is a celiac twist on the traditional book club. Teens and tweens meet monthly to discuss favorite gluten-free items centered on a theme. Our October discussion topic is Halloween. We will talk about GF candy and navigating parties. Bring your questions and share your experiences. There is a lot we can learn from each other. We meet ... Read More
A range of dermatological features have been associated with celiac disease and gluten-related disorders, including Dermatitis Herpetiformis, eczema and psoriasis, to name a few. Attendees will learn about the connection between the largest organ in our body and celiac disease and non-celiac gluten sensitivity in children and adults. “Celiac Disease and Your Skin” will be presented by Channi Silence, MS, ... Read More