Shine a Light on Celiac Disease

Francie KelleyLeave a Comment

Join us on Longwood Avenue right  in front of Boston Children’s Hospital  sign as we Shine a Light for Celiac Disease.

Bridges, city halls, and skyscrapers all over the world will be lit in support of International Celiac Disease Awareness Day.  We are so excited that Boston Children’s Hospital is part of this important event.

We will gather and enjoy the lights of the hospital and visit with each other to mark the occasion.

Learn more and see the other structures that will be lit for this event.

Society for the Study of Celiac Disease Virtual College Summit

Francie KelleyLeave a Comment

This is a program designed for the celiac disease community and geared towards students (and their parents) who are looking at colleges or currently enrolled in a University. This is interactive program. After a short presentation attendees will be split into groups and asked to come up to solutions for challenges that arise in college.

 

The summit is sponsored by Schar USA and at the end of the program all students who attend will be invited to apply for two $1,500 scholarships to support their college funding.

 

Family Wellness Day

Francie KelleyLeave a Comment

Even with the rain, we are excited and still on for this afternoon.

 

Join us for an afternoon of wellness and mindfulness activities. There will be a yoga class, a cooking demonstration and a mindfulness walk. No prior yoga experience is necessary. Kids and parents will be doing yoga together to enable parents to assist their children.

 

Yoga and mindfulness encourage relaxation of both the body and the mind. This can help reduce stress and anxiety. Which we know can be heightened in children with chronic conditions that already affect the GI tract. Our aim is to start teaching kids the connection between their mind and body, specifically their mind & gut as part of an integrated care approach to managing a diagnosis like celiac. Movement and relaxation can help support overall wellbeing and GI health!

 

Tickets are $5 per person.

 

Please note:

  • Event is rain or shine
  • Each person attending needs to purchase a ticket
  • Ticket sales end on 4/28/2023
  • Refunds available through 4/26/2023

 

Unbalanced Eating: The Spectrum of Eating Disorders with Gluten-Related Conditions.

Francie KelleyLeave a Comment

Research shows that disordered eating patterns are more common in people with gluten-related conditions. We will hear from Elena Bern, MD, MPH, Rose-Marie Slatherley, PhD, and Janelle Smith. MS, RDN, CEDS. They will present current findings and guidance on both conditions.

Some of the topics covered

  • Screening, diagnosis, and medical care of eating-disordered behavior
  • The intersection between diet-controlled conditions and disordered eating
  • Nutritional concerns in restrictive eating patterns in patients with digestive disorders.

Continuing Education Units are available.

 

Celiac Smarts

Francie KelleyLeave a Comment

A one-day symposium with learning opportunities for seasoned medical providers and the national celiac community.

 

Tickets:

In-person Adult (ages 13 and up)                     $30 per person
In-person Child (2 – 12)                                    $25 per person
In-person with CE Credit                                   $45 per person
Under 2                                                             Free

Virtual with CE Credit                                        $30 per person
Virtual                                                                $10 per person

 

Join us at the Sheraton in Needham, MA on October 1, 2023 for the 3rd annual Celiac Smarts. This year’s event is both in-person and live-streamed.

Our program will look at celiac disease (CD) through the ages – past, present and future.

We will begin looking at the evolution of diagnosing CD and how this past influences the future of celiac diagnosis. Our exploration of the present state of CD will look at barriers to implementing the gluten-free (GF) diet, culinary medicine to aid in adhering to the GF diet and more. We will also look towards the future of CD and if there is treatment beyond the GF diet?

A light breakfast and lunch will be served. There will be a vendor area and opportunities for you to engage with others in the celiac community.

This is a family friendly event. Kids are welcome in the presentations and in addition we will have targeted programs for kids.

CE accreditation is available for those attending in-person and for those who join us via the livestream.

College Wellness Series – Session 2

Francie KelleyLeave a Comment

Are you a college bound student with a diagnosis of celiac disease?  Join us for a 2 session program focused on the transition to college. Our topics will include healthy habits, stress-management and self-management.

Dates:             Session 1 – April 10, 2023 – 7:00 pm to 8:30 pm
                        Session 2 – April 13, 2023 – 7:00 pm to 8:30 pm

Format:            Virtual


Session 1 – Managing Celiac Disease at College

 Target Audience:

  • High school seniors (and their parents / guardians) recently accepted to college.
  • Current college students (and their parents / guardians) recently diagnosed with celiac disease interested in learning to manage the disease while at college.

Note: This program is not for high school students who are engaged in the college search process. We will not be addressing topics related to looking at or applying to college.

Overview:

A 90 minute information session to support college preparation with information shared by a physician, a dietician, a social worker and a current college student. There will be presentations and plenty of time to ask questions.

This session will be focused on

  • How to advocate for yourself in the college setting
  • How to establish healthy habits at school.
  • Self-management of a chronic disease and nutrition.
  • Setting-up accommodations with housing, the dining hall and disability services.

 

 


Session 2 – College Stress and Self-Management

 Target Audience:

  • High school seniors recently accepted to college.
  • Current college students recently diagnosed with celiac disease interested in learning to manage the disease while at college.

Note: This program is not for high school students who are engaged in the college search process. We will not be addressing topics related to looking at or applying to college.

Overview:

A 75 minute session lead by social work for those preparing for college and interested in learning more about stress management and self-management.

In this session we will discuss

  • Finding resources available on college campus for support, health, and wellness
  • Understanding the impact of stress on a chronic illness and ways to manage stress including mindfulness and yoga
  • Resources and tools to aid in stress management that you can bring with you to college
  • Psychoeducation of themes of chronic illness self-management in college

If you are already in college and interested in stress management and self-management, please connect with us to find out more information about this 1 time group!

 

College Wellness Series – Session 1

Francie KelleyLeave a Comment

Are you a college bound student with a diagnosis of celiac disease?  Join us for a 2 session program focused on the transition to college. Our topics will include healthy habits, stress-management and self-management.

Dates:             Session 1 – April 10, 2023 – 7:00 pm to 8:30 pm
                        Session 2 – April 13, 2023 – 7:00 pm to 8:30 pm

Format:            Virtual


Session 1 – Managing Celiac Disease at College

 Target Audience:

  • High school seniors (and their parents / guardians) recently accepted to college.
  • Current college students (and their parents / guardians) recently diagnosed with celiac disease interested in learning to manage the disease while at college.

Note: This program is not for high school students who are engaged in the college search process. We will not be addressing topics related to looking at or applying to college.

Overview:

A 90 minute information session to support college preparation with information shared by a physician, a dietician, a social worker and a current college student. There will be presentations and plenty of time to ask questions.

This session will be focused on

  • How to advocate for yourself in the college setting
  • How to establish healthy habits at school.
  • Self-management of a chronic disease and nutrition.
  • Setting-up accommodations with housing, the dining hall and disability services.


Session 2 – College Stress and Self-Management

 Target Audience:

  • High school seniors recently accepted to college.
  • Current college students recently diagnosed with celiac disease interested in learning to manage the disease while at college.

Note: This program is not for high school students who are engaged in the college search process. We will not be addressing topics related to looking at or applying to college.

Overview:

A 75 minute session lead by social work for those preparing for college and interested in learning more about stress management and self-management.

In this session we will discuss

  • Finding resources available on college campus for support, health, and wellness
  • Understanding the impact of stress on a chronic illness and ways to manage stress including mindfulness and yoga
  • Resources and tools to aid in stress management that you can bring with you to college
  • Psychoeducation of themes of chronic illness self-management in college

If you are already in college and interested in stress management and self-management, please connect with us to find out more information about this 1 time group!

 

What I learned at the International Celiac Disease Symposium

Francie KelleyLeave a Comment

Join us for a recap of the latest developments in celiac disease research and treatment from the October, 2022 International Celiac Disease Symposium. This symposium is a biannual gathering of scientists, health care professionals, patient associations, and industry leaders to discuss the latest developments in celiac disease.

We will hear presentations from our Boston Children’s Hospital Celiac Disease Program staff who attended this conference:

Denis Chang, MD, MS
Nan Du, MD
Vanessa Weisbrod, Director of Education & Community Engagement
Sharon Weston, MS, RD, CSP, LDN

 

Yoga and Mindfulness Meditation for Teens

Francie KelleyLeave a Comment

We are excited to be offering a series of 4 sessions to learn yoga and mindfulness strategies to help with stress and anxiety.

 

This group is for teens, age 13 – senior in high school, with a diagnosis of celiac disease. Due to licensing requirements this program is limited to current patients of Boston Children’s Hospital. That is the doctor you see is a member of the staff of Boston Children’s Hospital.

 

The sessions are held on Saturdays; March 11th, March 25th, April 1st and April 8th. You may come to a single session, join us for all 4 or come for as many as you can. You will need to register for each session individually.

 

In addition to the yoga and mindfulness activities, this is a great way to connect with other teens living with celiac disease.

 

This group is for teens, age 13 – senior in high school. Stay tuned for additional events that will be held for other age groups including Family Wellness program for younger children and families, and programing for college age patients.

Yoga and Mindfulness Meditation for Teens

Francie KelleyLeave a Comment

We are excited to be offering a series of 4 sessions to learn yoga and mindfulness strategies to help with stress and anxiety.

 

This group is for teens, age 13 – senior in high school, with a diagnosis of celiac disease. Due to licensing requirements this program is limited to current patients of Boston Children’s Hospital. That is the doctor you see is a member of the staff of Boston Children’s Hospital.

 

The sessions are held on Saturdays; March 11th, March 25th, April 1st and April 8th. You may come to a single session, join us for all 4 or come for as many as you can. You will need to register for each session individually.

 

In addition to the yoga and mindfulness activities, this is a great way to connect with other teens living with celiac disease.

 

This group is for teens, age 13 – senior in high school. Stay tuned for additional events that will be held for other age groups including Family Wellness program for younger children and families, and programing for college age patients.