Celiac Kids Connection

Monthly Board Meeting
2023-06-13 19:30 - 21:30, 2023-05-09 19:30 - 21:30, 2023-04-11 19:30 - 21:30, 2023-03-14 19:30 - 21:30 (America/New_York) | Connect with Zoom
ALL MEMBERS ARE WELCOME!
Our Celiac Kids Connection board of directors meets regularly to plan activities and set the goals and objectives for our group. Attending a board meeting is a great way to learn more about us, our activities and how we operate. Meetings are virtual and all members are welcome to attend. We love having your input.
Contact us for the Zoom link.
We hope to “see” you there.

Boston Children's Hospital - Eversource Walk for Kids
2023-06-11 09:00 - 12:00 | Various Locations
Become a Gluten-Free Gladiator and Support Celiac Kids Connection! We will be walking to raise money for Celiac Kids Connection at the Eversource Walk for Boston Children’s Hospital.

There are two options for this event. You may choose to either walk in person starting at the DCR Hatch Shell in Boston or create your own route and walk anywhere you like. The in-person walk begins at 9:00 a.m. and will have a 2-mile route and a 6-mile route. We plan to walk together and will have groups for both the 2-mile and 6-mile routes.

If you are not in the Boston area and wish to walk with other Gluten-Free Gladiators where you live, we will help connect you with others on our team. Complete this form to connect with others in your area.

Our fundraising goal is $25,000. That is an extraordinary amount for anyone to raise on their own, but as a team, we can work together to reach that goal. n. Our groups will be walking at the Hatch Shell, in various locations all over the country and you choose your own route to walk with friends.

Story Time with Jen Frank
2023-06-03 10:00 - 11:00 | Boston Children’s Hospital – Waltham, 9 Hope Ave., Waltham, MA, 02453, United States
We will end the school year with an IN-PERSON story time. Author Jen Frank will read her book The Worm Family Has It’s Picture Taken, a story about being different and loving who you are.

We will listen to and talk about the story. We will also have time to be with our gluten-free friends in person before we take a summer break. Story time will resume in September.

Jen Frank is a children’s book author. She and her family have been active members of Celiac Kids Connection for many years. We are so excited to have her join us for this story time.

If you plan to attend this event, please contact us at celiackidsconnection@childrens.harvard.edu.

Celiac Disease in Schools: A Seminar for School Social Workers and School Adjustment Counselors
2023-05-30 16:00 - 18:00 | Connect with Zoom
Join us to learn the latest guidance on the management of celiac disease in schools, forming partnerships with food service providers to ensure access to healthy and safe food, and discuss the social emotional and adjustment issues students with celiac disease face in the school environment.
This two-hour presentation will include both lecture and case-based presentations. Social workers completing this course receive 2.00 ACE CE continuing education credits.
If you are a parent , please share this information with your school social worker or school adjustment counselor.

Mrs. Katz and Her Hats!
2023-05-22 18:30 - 19:00 | Connect with Zoom
Join us and your gluten-free friends for story time with Mrs. Katz. See which of her 200 hats Mrs. Katz will wear during this month’s story time!

Mrs. Katz has been reading to children for over 30 years and makes all the stories she reads fun. In addition to the stories, Mrs. Katz loves to answer your questions.

This month our theme is Plants!

Society for the Study of Celiac Disease Virtual College Summit
2023-05-18 20:00 - 21:30 | Connect with Zoom
This is a program designed for the celiac disease community and geared towards students (and their parents) who are looking at colleges or currently enrolled in a University. This is interactive program. After a short presentation attendees will be split into groups and asked to come up to solutions for challenges that arise in college.

The summit is sponsored by Schar USA and at the end of the program all students who attend will be invited to apply for two $1,500 scholarships to support their college funding.

Shine a Light on Celiac Disease
2023-05-16 20:00 - 21:00 | Boston Children’s Hospital, 300 Longwood Ave, Boston, MA, 02115, United States
Join us on Longwood Avenue right in front of Boston Children’s Hospital sign as we Shine a Light for Celiac Disease.
Bridges, city halls, and skyscrapers all over the world will be lit in support of International Celiac Disease Awareness Day. We are so excited that Boston Children’s Hospital is part of this important event.
We will gather and enjoy the lights of the hospital and visit with each other to mark the occasion.
Learn more and see the other structures that will be lit for this event.

Family Food Connection Monthly Cooking Class
2023-05-10 12:00 - 13:00, 2023-03-15 16:00 - 17:00, 2023-02-08 16:00 - 17:00 | Connect with Zoom
Boston Children’s Hospital’s Family Food Connections offers monthly cooking classes for families. The cooking classes are free and will feature budget-friendly gluten-free recipes. This is a great opportunity for the whole family to learn new cooking skills and new recipes. There is ample opportunity to ask questions and learn about the food being prepared.
Classes are held via Zoom.
Everyone who registers will receive a link to the recording after the class.

Family Wellness Day
2023-04-30 14:00 - 16:30 | Powissett Farm, 37 Powisset St., Dover, 02030
Even with the rain, we are excited and still on for this afternoon.

Join us for an afternoon of wellness and mindfulness activities. There will be a yoga class, a cooking demonstration and a mindfulness walk. No prior yoga experience is necessary. Kids and parents will be doing yoga together to enable parents to assist their children.

Yoga and mindfulness encourage relaxation of both the body and the mind. This can help reduce stress and anxiety. Which we know can be heightened in children with chronic conditions that already affect the GI tract. Our aim is to start teaching kids the connection between their mind and body, specifically their mind & gut as part of an integrated care approach to managing a diagnosis like celiac. Movement and relaxation can help support overall wellbeing and GI health!

Tickets are $5 per person.

Please note:

Event is rain or shine
Each person attending needs to purchase a ticket
Ticket sales end on 4/28/2023
Refunds available through 4/26/2023

Unbalanced Eating: The Spectrum of Eating Disorders with Gluten-Related Conditions.
2023-04-26 13:00 - 14:00 | Connect with Zoom
Research shows that disordered eating patterns are more common in people with gluten-related conditions. We will hear from Elena Bern, MD, MPH, Rose-Marie Slatherley, PhD, and Janelle Smith. MS, RDN, CEDS. They will present current findings and guidance on both conditions.
Some of the topics covered

Screening, diagnosis, and medical care of eating-disordered behavior
The intersection between diet-controlled conditions and disordered eating
Nutritional concerns in restrictive eating patterns in patients with digestive disorders.

Continuing Education Units are available.

Mrs. Katz and Her Hats!
2023-04-25 18:30 - 19:00 | Connect with Zoom
Join us and your gluten-free friends for story time with Mrs. Katz. See which of her 200 hats Mrs. Katz will wear during this month’s story time!

Mrs. Katz has been reading to children for over 30 years and makes all the stories she reads fun. In addition to the stories, Mrs. Katz loves to answer your questions.

This month our theme is Spring!

Gluten-Free in College
2023-04-19 20:00 - 21:00 | Connect with Zoom
Join other students living with celiac disease in college.
This quarterly gathering will provides students a space to get to know each other, share ideas and chat about the issues they confront living gluten-free while attending college.
Meetings are the 3rd Wednesday of the month at 8:00 pm in the months of January, April. July and October.
We welcome students who are currently attending college.

College Wellness Series - Session 2
2023-04-13 19:00 - 20:30 | Connect with Zoom
Are you a college bound student with a diagnosis of celiac disease? Join us for a 2 session program focused on the transition to college. Our topics will include healthy habits, stress-management and self-management.
Dates: Session 1 – April 10, 2023 – 7:00 pm to 8:30 pm
Session 2 – April 13, 2023 – 7:00 pm to 8:30 pm
Format: Virtual

Session 1 – Managing Celiac Disease at College
Target Audience:

High school seniors (and their parents / guardians) recently accepted to college.
Current college students (and their parents / guardians) recently diagnosed with celiac disease interested in learning to manage the disease while at college.

Note: This program is not for high school students who are engaged in the college search process. We will not be addressing topics related to looking at or applying to college.
Overview:
A 90 minute information session to support college preparation with information shared by a physician, a dietician, a social worker and a current college student. There will be presentations and plenty of time to ask questions.
This session will be focused on

How to advocate for yourself in the college setting
How to establish healthy habits at school.
Self-management of a chronic disease and nutrition.
Setting-up accommodations with housing, the dining hall and disability services.

Session 2 – College Stress and Self-Management
Target Audience:

High school seniors recently accepted to college.
Current college students recently diagnosed with celiac disease interested in learning to manage the disease while at college.

Note: This program is not for high school students who are engaged in the college search process. We will not be addressing topics related to looking at or applying to college.
Overview:
A 75 minute session lead by social work for those preparing for college and interested in learning more about stress management and self-management.
In this session we will discuss

Finding resources available on college campus for support, health, and wellness
Understanding the impact of stress on a chronic illness and ways to manage stress including mindfulness and yoga
Resources and tools to aid in stress management that you can bring with you to college
Psychoeducation of themes of chronic illness self-management in college

If you are already in college and interested in stress management and self-management, please connect with us to find out more information about this 1 time group!

Family Food Connections Monthly Cooking Class
2023-04-12 16:00 - 17:00 | Connect with Zoom

What I learned at the International Celiac Disease Symposium
2023-04-11 16:00 - 17:30 | Connect with Zoom
Join us for a recap of the latest developments in celiac disease research and treatment from the October, 2022 International Celiac Disease Symposium. This symposium is a biannual gathering of scientists, health care professionals, patient associations, and industry leaders to discuss the latest developments in celiac disease.
We will hear presentations from our Boston Children’s Hospital Celiac Disease Program staff who attended this conference:
Denis Chang, MD, MS
Nan Du, MD
Vanessa Weisbrod, Director of Education & Community Engagement
Sharon Weston, MS, RD, CSP, LDN

College Wellness Series - Session 1
2023-04-10 19:00 - 20:30 | Connect with Zoom

Yoga and Mindfulness Meditation for Teens
2023-04-08 10:00 - 11:00 | Boston Children’s Hospital – Waltham, 9 Hope Ave., Waltham, MA, 02453, United States
We are excited to be offering a series of 4 sessions to learn yoga and mindfulness strategies to help with stress and anxiety.

This group is for teens, age 13 – 17 senior in high school, with a diagnosis of celiac disease. Due to licensing requirements this program is limited to current patients of Boston Children’s Hospital. That is the doctor you see is a member of the staff of Boston Children’s Hospital.

The sessions are held on Saturdays; March 11th, March 25th, April 1st and April 8th. You may come to a single session, join us for all 4 or come for as many as you can. You will need to register for each session individually.

In addition to the yoga and mindfulness activities, this is a great way to connect with other teens living with celiac disease.

This group is for teens, age 13 – senior in high school. Stay tuned for additional events that will be held for other age groups including Family Wellness program for younger children and families, and programing for college age patients.

Yoga and Mindfulness Meditation for Teens
2023-04-01 10:00 - 11:00 | Boston Children’s Hospital – Waltham, 9 Hope Ave., Waltham, MA, 02453, United States
We are excited to be offering a series of 4 sessions to learn yoga and mindfulness strategies to help with stress and anxiety.

This group is for teens, age 13 – senior in high school, with a diagnosis of celiac disease. Due to licensing requirements this program is limited to current patients of Boston Children’s Hospital. That is the doctor you see is a member of the staff of Boston Children’s Hospital.

The sessions are held on Saturdays; March 11th, March 25th, April 1st and April 8th. You may come to a single session, join us for all 4 or come for as many as you can. You will need to register for each session individually.

In addition to the yoga and mindfulness activities, this is a great way to connect with other teens living with celiac disease.

This group is for teens, age 13 – 17 senior in high school. Stay tuned for additional events that will be held for other age groups including Family Wellness program for younger children and families, and programing for college age patients.

Mrs. Katz and Her Hats!
2023-03-29 18:30 - 19:00 | Connect with Zoom
Join us and your gluten-free friends for story time with Mrs. Katz. See which of her 200 hats Mrs. Katz will wear during this month’s story time!

Mrs. Katz has been reading to children for over 30 years and makes all the stories she reads fun. In addition to the stories, Mrs. Katz loves to answer your questions.

This month our theme is ANIMALS!

Yoga and Mindfulness Meditation for Teens
2023-03-25 12:00 - 13:00, 2023-03-11 12:00 - 13:00 | Boston Children’s Hospital – Waltham, 9 Hope Ave., Waltham, MA, 02453, United States
We are excited to be offering a series of 4 sessions to learn yoga and mindfulness strategies to help with stress and anxiety.

This group is for teens, age 13 – senior in high school, with a diagnosis of celiac disease. Due to licensing requirements this program is limited to current patients of Boston Children’s Hospital. That is the doctor you see is a member of the staff of Boston Children’s Hospital.

The sessions are held on Saturdays; March 11th, March 25th, April 1st and April 8th. You may come to a single session, join us for all 4 or come for as many as you can. You will need to register for each session individually.

In addition to the yoga and mindfulness activities, this is a great way to connect with other teens living with celiac disease.

This group is for teens, age 13 – senior in high school. Stay tuned for additional events that will be held for other age groups including Family Wellness program for younger children and families, and programing for college age patients.

Mrs. Katz and Her Hats!
2023-02-28 18:30 - 19:00 | Connect with Zoom
Join us and your gluten-free friends for story time with Mrs. Katz. See which of her 200 hats Mrs. Katz will wear during this month’s story time!

Mrs. Katz has been reading to children for over 30 years and makes all the stories she reads fun. In addition to the stories, Mrs. Katz loves to answer your questions.

This month our theme is MUSIC!

From the Experts - Living Well with Celiac Disease and Diabetes Mellitus
2023-02-15 13:00 - 14:15 | Connect with Zoom
Join the Harvard Medical School Celiac Research Program and the National Celiac Association for a panel discussion. The panel will discuss the importance of screening and diagnosis of Type 1 diabetes in the celiac population, the medical care of diabetes and nutritional concerns and challenges of adhering to the gluten-free diet while managing diabetes effectively.
The panel will be moderated by Ciarán P. Kelly, MD, medical director of the Celiac Center at Beth Israel Deaconess Medical Center. The panel will include Caitlin Colling, MD, adult endocrinologist at MassGeneral for Children (MGfC), Janaki Vakharia, MD, senior endocrinology fellow at MGH and MGfC and Sharon Weston, MS, RD, LDN, CSP, FAND, from the Celiac Disease Program at Boston Children’s Hospital.

Monthly Board Meeting
2023-02-07 19:30 - 21:30 | Connect with Zoom
ALL MEMBERS ARE WELCOME!
Our Celiac Kids Connection board of directors meets regularly to plan activities and set the goals and objectives for our group. Attending a board meeting is a great way to learn more about us, our activities and how we operate. Meetings are virtual and all members are welcome to attend. We love having your input.

Please note that this month we are meeting on the first Tuesday of the months instead of our normal meeting on the second Tuesday of the month.

Contact us for the Zoom link.

We hope to “see” you there.

Mrs. Katz and Her Hats!
2023-01-30 18:30 - 19:00 | Connect with Zoom
Join us and your gluten-free friends for story time with Mrs. Katz. See which of her 200 hats Mrs. Katz will wear during this month’s story time!

Mrs. Katz has been reading to children for over 30 years and makes all the stories she reads fun. In addition to the stories, Mrs. Katz loves to answer your questions.

This month our theme is WINTER FUN!
