Back to School Meet-up for Teens

Francie KelleyLeave a Comment

Join us for a 2-session meet-up designed to connect teens preparing for the upcoming school year. These virtual sessions are on August 25th and September 1st.

Each session will be open discussions where we can learn from each other about managing celiac disease and the gluten-free diet at school. The discussion for week one will focus on “In School” activities like eating in the cafeteria, issues in class and clubs or sports teams.

Week 2 will focus on “Outside School” activities such as going out with friends, group events and how do deal with spontaneous plans when living gluten free requires so much planning.

In each session we will talk about advocating for yourself, understanding celiac disease, developing the skills to manage the gluten-free diet and much more.

 

We hope you will join us for both sessions.

You can RSVP below. Please register for each session independently.

 

Link to the registration for session 1.

Back to School Meet-up for Teens

Francie KelleyLeave a Comment

Join us for a 2-session meet-up designed to connect teens preparing for the upcoming school year. These virtual sessions are on August 25th and September 1st.

Each session will be open discussions where we can learn from each other about managing celiac disease and the gluten-free diet at school. The discussion for week one will focus on “In School” activities like eating in the cafeteria, issues in class and clubs or sports teams.

Week 2 will focus on “Outside School” activities such as going out with friends, group events and how do deal with spontaneous plans when living gluten free requires so much planning.

In each session we will talk about advocating for yourself, understanding celiac disease, developing the skills to manage the gluten-free diet and much more.

We hope you will join us for both sessions. You can RSVP below.

Please register for each session independently.

 

Link to the registration for session 2.

504 Form

Accommodations for a child with celiac disease should be documented within the context of tailored 504 plan to help promote health, while minimizing the risk of social stigmatization or exclusion from classroom wide activities to which other peers have access.

There is a template 504 plan available to assist schools with developing plans for a child with celiac disease. You can download this template below.

Make a difference. Make a connection. Become a volunteer.

Have you ever considered helping others with celiac disease? Are you interested in meeting others while providing service to the gluten-free community? One way to help is by joining one of our committees. These committees focus on specific goals, events or developing resources for our member families. We have committees focused on food insecurity, event planning, welcoming new families and more.

Anyone is welcome to serve on these committees.

The committees are:

Awareness and Advocacy – This group’s focus is to raise awareness and participate in advocacy for celiac disease and celiac research at the local, state and federal level. We meet the fourth Friday of the month at 3:30 pm

Communications/Social Media – This group’s focus is all of the ways we communicate such as newsletters, social media, website and more. We will ensure that those tools are working well for our group and our members. We meet on the third Tuesday of the month at 7:30 pm.

Food Insecurity – This group’s focus is helping families in need and educating service providers (like food banks and shelters) about the gluten-free diet. We meet the first Monday of the month at 11 am and the third Friday of the month at 3:30 pm.

Fundraising – This group is focused on raising funds to support the work of Celiac Kids Connection and the Celiac Program at Boston Children’s Hospital. We meet the second Friday of the month at 11 am

Membership Connection /Social Events – This group plans our events like the Holiday Party and Celiac Smarts. We also will be planning smaller group events based on specific regions or ages. We work with our mentoring program, our Pen Pal program and other avenues of member support. We meet on the fourth Wednesday at 7:30 pm.

Welcome New Members- This group is focused on assisting new families learn to live with celiac disease and the gluten-free diet. Assuring that new families know all of the ways CKC can help. We meet on the first Wednesday at 1:30 pm.

If you are interested in helping with any of these committees in a small or large way, please contact us.  If you are interested in one of these committees but are unable to attend the meetings, we are happy to talk with you about how you can support the group’s efforts with specific tasks

How It’s Made! A look inside Schar’s Gluten-Free Facility

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Have you ever sat there eating a Schar gluten-free product and said to yourself, “I wonder how that’s made?” This month we’ve got a very special behind-the-scenes look at how Schar’s team makes their delicious gluten-free products.

Meghan Donnelly, MS, RDN, CDN, Schar’s Senior Manager of Nutrition Services will guide us through this one-hour webinar to discuss Schar’s gluten-free products, interview team members at the plant, and answer all of your burning questions.

 

Gluten-Free Chef’s Dinner with Yoong Tong Thai Restaurant

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Join us for a virtual chef’s dinner with Chef Wachira Sittikong of Yoong Tong Thai in Northborough MA. Chef Wachira will demonstrate how to make Thai Red Curry and discuss how to turn traditional Thai dishes into delicious gluten-free meals. You have the opportunity to watch and learn OR cook along with the chef.

COOK ALONG – Chef Wachira is preparing meal kits with all the ingredients you will need to cook along with him during the demo. These ingredients boxes can be picked up from Yoong Tong Thai Restaurant on either Saturday July 17th between 3pm-9pm OR on Monday July 19th between 3pm-6pm. Please note on your registration when you plan to pick up your box.

WATCH & LEARN – If cooking along isn’t your thing, that’s ok too! Log in and watch the demo and consider making the meal at another time. We will provide an ingredient list and recipe instructions for everyone.

TAKE OUT – You may also order take out from the restaurant. This will allow you to enjoy Chef Wachira’s amazing gluten-free options while you watch the demo. Scroll down to see the full gluten-free menu in the images.

No matter what you do, you will learn, be entertained and have an opportunity to connect with other families living with celiac disease.


Chef Wachira is a passionate, creative and inspiring chef with over twenty years of food service experience. His work has included working as a child in his family restaurant, working with several Boston renowned restaurants and word class hoteliers. His experience is in using farm grown ingredients with an emphasis on local, sustainable and responsibly sourced, fresh and nutrient-dense ingredients and produce.


For more detailed information and to register click the link below.

GF Faves Club – July 2021

Francie Kelley2 Comments

Gluten-Free Faves Club is a celiac twist on the traditional book club. Teens and tweens meet monthly to discuss favorite gluten-free items centered on a theme.

Our July discussion is navigating gluten-free East Asian cuisine. Let’s share experiences and advice. You can share the places you like to eat as well as your favorite recipes

We meet on the 4th Sunday at 7 pm.

Please join us.

Celiac Disease Early Childhood Parent Series

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Weekly Series – July 27, 2021 – August 17, 2021

Join Celiac Kids Connection at Boston Children’s Hospital for a 4-week series designed to support parents with planning for the upcoming school year. The seminar is designed for families with a child entering pre-k through second grade.

Each week we will explore a different topic. There will be a short presentation, followed by group discussion and lots of time for questions. We ask that you please plan to attend all four meetings so that group members can get to know one another and provide ongoing support throughout the year.

The meetings will occur on Tuesday nights at 8:00pm (Eastern Time) and last approximately 1 hour.

Session 1 – July 27th: Planning Ahead for the New School Year: Setting Your Child Up for Success

Session 2 – August 3rd: Lunch Line Logistics: Successfully Navigating Your School’s Cafeteria

Session 3 – August 10th: Birthdays, Carnivals, and the PTO

Session 4 – August 17th: Supporting Your Child in Becoming a Strong Advocate

 

Ask Tara McCarthy, MS, RD, LDN – June 2021

This month’s “Ask the Expert” features Tara McCarthy, MS, RD, LDN, Clinical Nutrition Specialist, Boston Children’s Hospital. Tara answers questions about multi vitamins and strawberries.

Question – My pediatrician thinks my daughter should be taking a multivitamin plus iron. Do you have a recommendation for a gluten-free children’s multivitamin?

Tara McCarthy – This is a very common question for dietitians. Celiac Disease can cause damage to intestinal villi which is where many vitamins and minerals are absorbed. Some patients are diagnosed with celiac disease after the diagnosis of iron deficiency anemia. We recommend a multivitamin for patients newly diagnosed with celiac disease. In the United States, wheat products are fortified with B vitamins, therefore when you avoid gluten you may be missing out on these extra vitamins. Of note, many gummy multivitamins do not have adequate B vitamins so be sure to check the label. The recommendation would be a chewable vitamin or one the child can swallow as these are usually more complete. We all know that children do not always eat the perfect diet especially in the early phases of celiac disease because the child may have symptoms that influences what they eat. As a rule of thumb, if a child eats 5 different fruits and vegetables daily, has a good variety of grains and whole natural foods which contain iron then, then they may not need a multivitamin. If your child struggles in any of these areas, consider the multivitamin as a safety net. The most important information is for any multivitamin or supplement to say GLUTEN-FREE on the label.

For these reasons, lack of diet variety, damaged villi and vitamins missing in the gluten-free diet, many children with celiac disease may benefit from a chewable multivitamin with iron. It is always important to meet with a registered dietitian who specializes in celiac to look at your child’s specific intake. My recommendation is always a chewable multivitamin that says gluten-free on the label and has close to 100% of all the vitamins and minerals. My current go to recommendation is Target brand Up and Up multivitamin.

(Note: Flintstones has changed its formulation and is no longer gluten-free).

Question – Strawberries are in season and my kids have always loved strawberry picking. Since my son’s diagnosis of celiac disease, I am concerned about strawberries and strawberry picking. I have read that strawberries are grown on straw and most often wheat straw. Is this true? And if yes, is this a problem for gluten cross-contact in eating strawberries?

Also, is it a concern being in the strawberry field picking the strawberries and coming into contact with the wheat straw?

Tara McCarthy – Just last week I noticed my strawberries were labelled gluten-free and thought this was hysterical, because of course strawberries are gluten-free. So, I looked more into this and the name is “strawberries” because these are berries that were originally grown on straw. Straw and hay are often used interchangeably. Straw is the stalk of the plant left over after the grain has been harvested, the gluten is in the grain. Hay is harvested before the seed (which contains gluten) is made. Today, not all strawberries are grown on straw. Plus, the wheat is in the grain kernel and not the straw part of the plant. Our recommendation would be to not worry about gluten contamination in fresh strawberries.  Always wash your berries before you eat them and always wash your hands before you eat anything. Strawberry picking is a great activity that we would encourage in the celiac community.

Disordered Eating and Celiac Disease

Francie KelleyLeave a Comment

Disordered eating can come in lots of different forms and affect people with celiac disease in lots of different way. For example, a person living with celiac disease could be misdiagnosed with an eating disorder OR develop one as a result of poor management of the gluten-free diet. Recent research has also shown that women with celiac disease could be twice as likely as the general population to develop anorexia.

Join Dr. Rose-Marie Satherley from the University of Surrey and Sharon Weston, MS, RD, LDN from Boston Children’s Hospital to hear about different types of disordered eating, the latest research, and how to support someone with celiac disease struggling to manage these conditions.